From financial aid to prescription assistance to disability support, we've compiled a list of resources to help you more easily navigate life with Lyme.
Select the resource topic below.
Financial Assistance
LymeTAP
www.lymetap.com
The Lyme Test Access Program is a nationwide (US only) financial assistance program providing eligible Lyme patients with a reimbursement of up to 75% of out-of-pocket expenses for the cost of Lyme disease testing. Visit their website for eligibility requirements and how to download and submit an application.
Lyme Treatment Foundation
www.lymetreatmentfoundation.org
The Lyme Treatment Foundation provides medical treatment grants in the United States, Canada and parts of Europe (including the UK and Germany) to fund diagnostic testing and treatment of Lyme disease and the associated tick-borne illnesses. Grants are open patients of all ages.
Lyme Aid (Facebook Group)
www.facebook.com/groups/619791794746319
Lyme Aid is a public Facebook group which allows patients to connect and share fundraising campaigns for personal Lyme-related care.
Additioanal financial resources:
Speak to your local social security office or browse your state's website for information on health and food benefits, energy assistance programs (heating and cooling), and other support resources.
Prescription Assistance
RXAssist
http://www.rxassist.org
RX Assist is a comprehensive resource for patient assistance programs, including a prescription savings card and other free or low-cost medicine programs.
Partnership for Prescription Assistance
https://www.pparx.org
PPA is a free service that connects patients with public and private prescription assistance programs to help reduce the cost of prescription drugs and healthcare services.
NeedyMeds
www.needymeds.org
A nationwide non-profit organization providing resources on affordable healthcare programs and prescription costs, including financial assistance programs and prescription discount cards.
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Disability Support
Government Benefits
www.benefits.gov
From Medicaid programs to food benefits, government assistance can provide necessary financial relief when you’re struggling to heal from a debilitating illness such as Lyme disease. Select your state at benefits.gov to see what programs are available to you. International patients: use your search browser or speak to a representative to see what programs are available in your country.
Filing for Disability Benefits When You Have Lyme Disease
www.lymedisease.org/ssdi
From LymeDisease.org’s Touched By Lyme blog, attorney and Lyme advocate Barbara Arnold breaks down the steps to filing for Social Security Disability for Lyme disease.
Lyme Insurance and Disability
www.lymedisease.org/members/resources/resources-lyme-disease-insurance-disability
For members of LymeDisease.org only. A comprehensive list of resources related to insurance and disability for Lyme disease.
Social Service Connections for Lyme Disease
www.facebook.com/groups/648205888600184
A private Facebook group (request to join) providing free resources related to insurance and disability claims. A supportive community, this groups allows members to ask questions and hear success stories related to insurance and disability cases while providing encouragement to continue in the fight against Lyme disease.
How To Get On
www.howtogeton.wordpress.com
Serving as a guide for those with ME/CFS (often associated with Lyme disease) and other chronic illnesses severely limiting a patient's mobility, How To Get On provides a wealth of information on applying for Social Security Disability as well as invaluable additional resources.
Check out this Tik Tok channel for helpful information on how to navigate your disability application, hearing, or review or visit their video library.
Know of another resource? Get in touch!
LymeBrave Foundation, Inc. is unaffiliated with the listed organizations unless otherwise noted.