PATIENT RESOURCES

LEADING LYME ORGANIZATIONS

Below is a list of Lyme organizations helping to lead the fight for Lyme disease education and awareness while supporting Lyme research and support through fundraising initiatives.

Know of another resource? Get in touch!

LymeBrave Foundation, inc. is unaffiliated with the listed organizations unless otherwise noted.

Lyme Organizations

LymeBrave Foundation
www.lymebravefoundation.org
That's us! We're a national non-profit organization and central support center aimed at providing education and awareness programs that focus on the patient and caregiver experience, particularly the emotional toll that Lyme disease can take. We also offer support programs for patients and caregivers. 100% of donations received are filtered back into the Lyme community in the form of education and awareness initiatives, support programs, and adult wellness grants (coming soon!).
 
PA Lyme Resource Network
PaLyme.org
Centered in Pennsylvania, PA Lyme Resource Network provides education, support, and advocacy for Lyme patients with a network of in-person support groups across the state. Their sister organization, LymeActionPA, has been instrumental in driving legislation for Lyme disease treatment coverage in Pennsylvania.

Global Lyme Alliance
www.globallymealliance.org​
Global Lyme Alliance is the leading private non-profit organization specializing in the prevention, diagnosis, and treatment of Lyme and other tick-borne diseases through science-based research and education. Renowned for its grants program, which funds world-class research aimed at providing measurable advances in Lyme Disease treatment, Global Lyme Alliance also offers innovative education and awareness programs for the general public and physicians, including a new comprehensive educational curriculum for students.

ILADS
www.ilads.org
In a sea of medical organizations laying claim to understanding the diagnosis and treatment of Lyme Disease, ILADS is one of the foremost non-profit medical societies that takes into account the severity of the disease, the urgency for education and long-term care, and the research demonstrating the persistence of the Borrelia burgdorferi bacteria in Chronic Lyme Disease patients. ILADS provides updates to Lyme Disease and co-infection research and legislation as well as information regarding diagnosis, treatment, and recovery for both the patient and medical community. The ILADS website also includes physician referrals in conjunction with their ILADEF (International Lyme and Associated Diseases Educational Foundation) physician training program.

Lyme Disease Association
www.lymediseaseassociation.org

Lyme Disease Association is a national organization dedicated to education, prevention, support, and research for Lyme disease. Over the years, LDA has partnered with and funded programs with leading institutions for Lyme disease research, including various universities. In 2007, LDA helped to co-found Columbia University's Lyme & Tick-Borne Diseases Research Center in New York, devoted to studying Chronic Lyme disease.

Lyme Disease Challenge
www.lymediseasechallenge.org
A grassroots effort to spread awareness for Lyme disease, Lyme Disease Challenge is one of the leading non-profit organizations raising funds for Lyme research while making the community's voices heard in a fun and creative way. Home to the "Take A Bite Out of Lyme Challenge," which runs during Lyme Awareness Month each May, Lyme Disease Challenge donates all funding to International Lyme and Associated Diseases' (ILADS) ILADEF educational program. Visit their page and see how you can help take a bite out of Lyme!

LymeDisease.org

www.lymedisease.org
A prominent Lyme advocacy organization in the United States since 1989, LymeDisease.org provides news, information, and analysis via an extensive educational website, email newsletters, blogs, social media, and its esteemed online journal, The Lyme Times. It also sponsors MyLymeData, a patient-powered research project that focuses on Chronic Lyme Disease. Additionally, LymeDisease.org offers a network of online support groups while working with Lyme advocates throughout the country on both local and national legislative and awareness efforts.

 

Lyme Warrior
www.lymewarrior.us

Looking for cool Lyme disease merchandise? Lyme Warrior raises money for research and education through their signature Lyme-related apparel and accessories while helping to spread awareness in the Lyme Warrior community.


NatCapLyme
www.natcaplyme.org
With chapters throughout the northeast, NatCapLyme is a leading advocacy organization promoting prevention of Lyme disease and other tick-borne illnesses through education and awareness efforts. Their additional legislative efforts promote a cure for all, and their tireless work played a vital role in helping to pass the groundbreaking Lyme Disease Testing Information Disclosure Act of 2013--a bill that makes Virginia the first state to require that medical offices inform patients of the limitations of the current Lyme disease testing model.