Lyme disease often causes significant cognitive impairment, which means patients may rely on you as their caregiver to accompany them to appointments and make sense of doctor’s instructions and newly-prescribed medications. Below is a list of suggestions for how to make the most of these appointments.


  • Keep a notebook or journal specifically for doctor appointments. In between visits, write down any questions or concerns that arise, including reactions to medications and new, worsening, or improved symptoms.

  • Keep an updated list of medications and supplements to discuss with the physician.

  • Confirm the appointment with both the physician’s office and the Lyme patient.

  • Allow the Lyme patient to speak on their own behalf, particularly when reporting on symptoms. Intervene when necessary for clarification.

  • Ask any necessary questions of the physician and record all answers for the Lyme patient.

  • Record the physician’s care instructions.

  • Record and confirm changes in medication.

  • Verify any follow-up appointments.


Patient Appointments:
Keep track of all upcoming appointments with a bonus Appointment Summary box to make note of any changes to care.

Patient Log:
Review the patient’s day-to-day wellness and make note of any improvement or worsening of symptoms to share with the patient’s treating physician.


Master Medication Management Chart:
Keep track of current prescribed medications and supplements and confirm or record changes with the patient’s treating physician.

Crisis Lifeline

Lyme patients are at-risk of suicide due to the accompanying decrease in quality of life. If you or someone you love is suffering from depression or suicidal ideation, contact your physician immediately or call the
National Suicide Prevention Lifeline




LymeBrave Foundation, Inc. is an education and support services 501(c)(3) non-profit organization created by patients, for patients. The material found herein is for informational purposes only and is not a substitute for the medical services or advice of professionals. While we aim to provide emotional support resources to patients and caregivers, LymeBrave Foundation, Inc. makes no representation of warranties with respect to the context of the information herein. LymeBrave Foundation, Inc. is not liable for any damages, including the health and wellbeing of individuals, arising herefrom. LymeBrave Foundation, Inc. is not responsible for third-party content, nor does it recommend or endorse third-party content.

© 2021  LymeBrave Foundation, Inc.