Lyme disease often causes significant cognitive impairment, which means patients may rely on you as their caregiver to accompany them to appointments and make sense of doctor’s instructions and newly-prescribed medications. Below is a list of suggestions for how to make the most of these appointments.


  • Keep a notebook or journal specifically for doctor appointments. In between visits, write down any questions or concerns that arise, including reactions to medications and new, worsening, or improved symptoms.

  • Keep an updated list of medications and supplements to discuss with the physician.

  • Confirm the appointment with both the physician’s office and the Lyme patient.

  • Allow the Lyme patient to speak on their own behalf, particularly when reporting on symptoms. Intervene when necessary for clarification.

  • Ask any necessary questions of the physician and record all answers for the Lyme patient.

  • Record the physician’s care instructions.

  • Record and confirm changes in medication.

  • Verify any follow-up appointments.


Patient Appointments:
Keep track of all upcoming appointments with a bonus Appointment Summary box to make note of any changes to care.

Patient Log:
Review the patient’s day-to-day wellness and make note of any improvement or worsening of symptoms to share with the patient’s treating physician.


Master Medication Management Chart:
Keep track of current prescribed medications and supplements and confirm or record changes with the patient’s treating physician.