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The Pursuit of Answers

July 7, 2017

LymeBrave founder Susan Pogorzelski has partnered with leading Lyme organization Global Lyme Alliance
as a regular contributor to their #MyLymeLife essay series.

 

"Sometimes I look back on all those years and doctors, and I’m stunned by the flippancy with which I was treated. Yet I know even my experiences are tame in comparison to what I’ve heard from other Lyme patients. I remember a time when yet another doctor scolded me for looking up my symptoms on the internet, for not trusting him to do his job. But it was only by trusting myself that there was something more going on here, that there was some complex piece to this health puzzle that had yet to be resolved, that I ended up saving my life.

Over the years, I’ve learned to become my own health advocate, to speak up when a diagnosis or treatment doesn’t seem right. I’m formidable. I ask question after question and demand the reply. As Lyme patients, we don’t have a choice. While the medical community is slowly learning thanks to increased awareness, many patients continue to fall through the cracks, misdiagnosed with Band-Aids placed on aggravating symptoms, concerns dismissed with a flippant wave of the hand or those few damning words: “It’s just a virus.”

There’s one thing I know for certain now, after all this time: We are worthy of answers."

 

 

 

A note from the author:
 

It has been a pleasure and a privilege to partner with Global Lyme Alliance this past year for these essays. As I move forward with new Lyme advocacy efforts, including the founding of LymeBrave Foundation, I would like to extend my greatest thanks to such an esteemed organization for the opportunity to share my experiences.

 

Read my final essay from Global Lyme Alliance, "The Pursuit of Answers: What My Doctors Said," part of GLA's #MyLymeLife series.

 

 

 

 

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© 2018  LymeBrave Foundation, Inc.

LymeBrave Foundation, Inc. is an education and support services 501(c)(3) non-profit organization created by patients, for patients. The material found herein is for informational purposes only and is not a substitute for the medical services or advice of professionals. While we aim to provide emotional support resources to patients and caregivers, LymeBrave Foundation, Inc. makes no representation of warranties with respect to the context of the information herein. LymeBrave Foundation, Inc. is not liable for any damages, including the health and wellbeing of individuals, arising herefrom. LymeBrave Foundation, Inc. is not responsible for third-party content, nor does it recommend or endorse third-party content.

Crisis Lifeline

Lyme patients are at-risk of suicide due to the accompanying decrease in quality of life. If you or someone you love is suffering from depression or suicidal ideation, contact your physician immediately or call the
National Suicide Prevention Lifeline

 

1-800-273-TALK
(1-800-273-8255)

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